A few months ago I finally discovered other people who have lived with a jpouch for many years -- on Facebook, of course. I don't know why I didn't think of looking there sooner, given that I'd been searching in vain for a couple of years. Actually there are a few different Facebook discussion lists for people with jpouches; I joined the largest one. Finally, people who have the same problems that I have; and some of them even have solutions!
I'm especially encouraged to "meet" people who have had their jpouches as long as I've had mine (almost seven years), and even longer in some cases. For lack of a better term, we're calling ourselves "long-timers." A few people in the long-timer group have replied to my inquiry about their experiences with gallstones and gallbladder surgery. Unanimously they report positively regarding the surgery, i.e., that removing their gallbladder solved a lot of pain.
This week I'm hoping to compare symptoms with them, to establish whether my pain profile is similar to theirs.
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